The Survey of Disability, Ageing and Carers (SDAC) is a national survey conducted by the Australian Bureau of Statistics (ABS) to collect comprehensive data on people living with disability, older Australians (aged 65 and over), and those who provide unpaid care. The 2022 survey aimed to inform policy and service planning by capturing information on health, support needs, social participation, and living arrangements. It included both household and cared-accommodation populations and introduced an online self-completion option for the first time, enhancing accessibility and coverage.
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A census of Community Aged Care Packages (CACP) outlets and care recipients, covering one week of the year. Outlets were asked record assistance provided during 7 consecutive days within the period 16 September 2002 and 14 October 2002. Publications
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The Australian Burden of Disease Database contains aggregate burden of disease metrics from the Australian Burden of Disease Study. This includes: years of life lost (YLL) years lived with disability (YLD) disability-adjusted life years (DALY) for over 200 diseases and injuries. It also includes estimates of attributable burden (DALY) for around 20 individual risk factors. Publications, Summary tables published in electronic form
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The first data were collected for 2000-01; this was considered a pilot year. The data from 2001-02 onwards contain information about alcohol and other drug treatment services; the clients who use these services; the types of drug problems for which treatment is sought and the types of treatment provided. Publications, Summary Tables, Statistics, Data cubes
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The 45 and Up Study is a large Australian cohort study that began recruiting in 2005 and is described on a webpage created as part of the Sax Institute’s 2022 site update. Over 15 years of longitudinal data from surveys covering broad health and social topics alongside linked datasets from medicare, PBS, hospital, and cancer registry.
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Contact Person: 45andUp@saxinstitute.org.au
Key findings on how people use their time in Australia. The Time Use Survey (TUS), conducted from November 2020 through to July 2021, measured the daily activities of people aged 15 years and over in Australia to provide insights into how people spent their time. Care defined as physical care only
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The Dementia Awareness Survey is the largest nationally representative community survey of its kind in Australia. It collects information on how much people know about dementia and their attitudes towards dementia and people living with dementia. The survey results will help inform priorities and areas for dementia awareness initiatives and prevention activities that can reduce the risk or delay the development of dementia.
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Every two years Carers NSW, together with the Australian State and Territory Carer Organisations, conducts a comprehensive survey to better understand what carers want and need.
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The Dementia in Australia Online Report and Downloadable Data Tables provides a comprehensive picture of dementia in Australia, including the latest statistics on dementia prevalence, burden of disease, deaths, expenditure, as well as the use of health and aged care services among people with dementia and information on carers of people with dementia. Its key findings are based on AIHW’s re‑analysis of ABS Survey of Disability, Ageing and Carers (SDAC) microdata, supplemented by additional health and aged‑care datasets.
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The Australian Cancer Database (ACD) contains data about all new cases of cancer diagnosed in Australia since 1 January 1982, excluding basal and squamous cell carcinomas of the skin. Publications, Summary Tables, Statistics
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Contains data on the demographics and structure of the nursing labour force
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The Carer Wellbeing Survey asks people to share their experiences – past and present – of being a carer and the support services they use, including the Australian Government Carer Gateway. The survey’s results help determine supports, advocacy and resources for carers nationwide.
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The Hospital Dementia Services (HDS) survey obtained information about the availability of aged care and dementia services in New South Wales public hospitals for the period 1 July 2006 to 30 June 2007.
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The Hospital Dementia Services (HDS) survey obtained information about the availability of aged care and dementia services in New South Wales public hospitals for the period 1 July 2006 to 30 June 2007.
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