The first data were collected for 2000-01; this was considered a pilot year. The data from 2001-02 onwards contain information about alcohol and other drug treatment services; the clients who use these services; the types of drug problems for which treatment is sought and the types of treatment provided. Publications, Summary Tables, Statistics, Data cubes
Access: Available with approval; restricted | Data Quality:
Best Quality
The Dementia in Australia Online Report and Downloadable Data Tables provides a comprehensive picture of dementia in Australia, including the latest statistics on dementia prevalence, burden of disease, deaths, expenditure, as well as the use of health and aged care services among people with dementia and information on carers of people with dementia. Its key findings are based on AIHW’s re‑analysis of ABS Survey of Disability, Ageing and Carers (SDAC) microdata, supplemented by additional health and aged‑care datasets.
Access: Open | Data Quality:
Best Quality
The Dementia Awareness Survey is the largest nationally representative community survey of its kind in Australia. It collects information on how much people know about dementia and their attitudes towards dementia and people living with dementia. The survey results will help inform priorities and areas for dementia awareness initiatives and prevention activities that can reduce the risk or delay the development of dementia.
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Best Quality
The Australian Burden of Disease Database contains aggregate burden of disease metrics from the Australian Burden of Disease Study. This includes: years of life lost (YLL) years lived with disability (YLD) disability-adjusted life years (DALY) for over 200 diseases and injuries. It also includes estimates of attributable burden (DALY) for around 20 individual risk factors. Publications, Summary tables published in electronic form
Access: Available with approval; restricted | Data Quality:
Best Quality
Ten to Men: The Australian Longitudinal Study on Male Health was commissioned by the Department of Health and Aged Care following the 2010 National Male Health Policy, and currently serves the National Men’s Health Strategy 2020-2030. This is Australia’s first national longitudinal study that focuses exclusively on male health and wellbeing. The cohort was recruited using a stratified, multi-stage & cluster sampling design to select males aged 10–55 years. Recruitment of eligible participants and Wave 1 of the data collection occurred between October 2013 and July 2014, resulting in a reconciled sample size of 16,021. The survey content was structured around six key research domains relevant to male health: wellbeing and mental health, use of health services, health-related behaviours, health status, health knowledge and social determinants.
Access: Available with Approval | Data Quality:
Best Quality
Contact Person: info@tentomen.org.au
The 45 and Up Study is a large Australian cohort study that began recruiting in 2005 and is described on a webpage created as part of the Sax Institute’s 2022 site update. Over 15 years of longitudinal data from surveys covering broad health and social topics alongside linked datasets from medicare, PBS, hospital, and cancer registry.
Access: Available with Approval | Data Quality:
Best Quality
Contact Person: 45andUp@saxinstitute.org.au
Key findings on how people use their time in Australia. The Time Use Survey (TUS), conducted from November 2020 through to July 2021, measured the daily activities of people aged 15 years and over in Australia to provide insights into how people spent their time. Care defined as physical care only
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Best Quality
The Australian Cancer Database (ACD) contains data about all new cases of cancer diagnosed in Australia since 1 January 1982, excluding basal and squamous cell carcinomas of the skin. Publications, Summary Tables, Statistics
Access: Available with approval; restricted | Data Quality:
Best Quality
The Hospital Dementia Services (HDS) survey obtained information about the availability of aged care and dementia services in New South Wales public hospitals for the period 1 July 2006 to 30 June 2007.
Access: Restricted | Data Quality:
Best Quality
A census of Community Aged Care Packages (CACP) outlets and care recipients, covering one week of the year. Outlets were asked record assistance provided during 7 consecutive days within the period 16 September 2002 and 14 October 2002. Publications
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Best Quality
The Hospital Dementia Services (HDS) survey obtained information about the availability of aged care and dementia services in New South Wales public hospitals for the period 1 July 2006 to 30 June 2007.
Access: Available with approval; restricted | Data Quality:
Best Quality
The AEDC provides evidence to support health, education and community policy and planning. AEDC data highlights what is working well and what can be improved to support children and their families. AEDC data are collected every three years. The sixth collection took place in 2024. Teachers of children in their first year of full-time school complete a questionnaire that collects data on five key areas, or ‘domains’, of early childhood development. These domains have been shown to predict later mental health, wellbeing and academic outcomes. AEDC data is publicly available at various geographies including: National State/territories, AEDC communities, AEDC local communities and various social geographies defined by the Australian Statistical Geography Standard (ASGS). Data that is not publicly available through the AEDC website may be available by application or agreement. Integrated data can be requested from authorised data linkage units and integrating agencies, either directly or via application to the AEDC Data Management Agency.
Access: Open | Data Quality:
Best Quality
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